General information – The name “Trisomy” means three (“tri”) copies of a chromosome (“somy”). Unlike most individuals, people that have any form of Trisomy are born with a whole or partial third copy of a chromosome, instead of the expected two. For example, a child that has a third copy of the number 21th chromosome, [...]

It’s time for Maggi’s next surgery. Dr. Devito has told us that Maggi’s VEPTR II rod is pretty near the end of it’s ability to be extended. With that being said, he will do either one of two things: 1- He’ll extend the rod to the maximum limit, meaning that it would be replaced during [...]

Sleep StudyMaggi had her sleep study at Scottish Rite in June 2010. We will be seeing her pulmonologist the second week of August for the results. Maggi will also be placed on a monitor to measure her oxygen levels. If her stats go below normal, we will place her on oxygen through a c-pap device. [...]