Apr 11
10
Hey everyone! We’ve been meaning to get some updates going, but to be honest, it’s been on a back burner for so long due to Maggi’s recent health problems. To date, she’s been suffering from a pollen allergy for over 6 weeks! Poor girl is miserable!
But we’ll come back to that one another day…
Maggi’s upcoming surgery is on April 20. It’s another rod lengthening. That’s providing she’s cleared by the pre-op visit on April 18… which is her 6th birthday! We’ll have more surgery updates to come…
…in the meantime, we have a challenge for you!
We haven’t had a birthday party for Maggi since her 1st birthday. It’s either been too close to surgery, or she’s been sick… and of course, we’re not able to give her a party this year, either. We REALLY wanted to give her a party, too, since our original “report” from the geneticist was that she may only live to be 3-5… and since she’s now turning 6, well that’s even MORE cause for celebration!!
Here’s where the challenge comes in…
Since we can’t give her a party, we’re asking YOU to do it! We’d like you ALL to throw a party for Maggi. Invite your friends and family that know about Maggi, and celebrate this miracle! Invite your friends and family that DON’T know about Maggi, and educate them about her and about Trisomy 9 Mosaic Syndrome! You could have 2 people and call it a party, or have ALL your friends and family over and call it a party! We just want SOMEONE to celebrate this miracle child of God and her life so far. Have cake, ice cream and dinner, if you want… or just have a cake. But the challenge is to do it, take pictures, and email them to us… or post them to your Facebook… or BOTH! =)
We have no prizes to give, no cash awards or neat rewards… just our gratitude for remembering our little miracle on her 6th birthday.
Thank you all so much for your caring and understanding… and your kind words, thoughts and prayers. We’re so lucky!
God Bless!
Patrick
hello, i just found your site today, 6/26/11. i could not find any updates. if there are any, i really REALLY want to read them, so can you please direct me to the site. my heart and prayers go out to Maggi and her family.
take care
Ryan
There are updates. =) You can just visit the main site (maggiblair.com) and read from there… the newest updates are right on the front page. =)
Hi, this is Maggi’smom, Donna! The boys also send their love, and we all are so proud of Maggi for pushing through this last year. She battled two severe infections, one in September and the other during the holidays. Both times she almost passed away. So, let’s focus on the amazing child Maggi is, the fighter she has proven to be! Also, she continues to smile while enduring all of her pain and suffering. We send our love to all of the other families with precious babies who have rare trisomy disorders and invite you to explore a little part of their world by visiting a link for the TRIS PROJECT. All of our Trisomy kids are loving, patient and such a gift to their families. We hope to continue to educate our community about Maggi’s syndrome and one day we will have an impact on the lives of families deserving of financial help so they can provide the care their special babies desperately need.