News

Maggi is one week post-op. She did fantastic and the surgeon was able to move the VEPTR 2 Rod up two clicks, which is a lot. Maggi came home the same day and slept straight through her first night home. We are so relieved that she bounced back so quickly this surgery, as the one in April was very difficult for her. Monday, Maggi had a fever over 102. We took her to the pediatrician and then to the hospital for bloodwork. Maggi had a slightly elevated count, which showed Influenza A. She is doing much better today and luckily has not had to go back into Scottish Rite to treat the infection.

Thank you for your prayers!

Maggi’s back began bothering her badly over this past weekend (3/28) and we called the ortho surgeon first thing Monday morning. We did notice that her VEPTR 2 Rod feels slightly different in the center where the lengthening clamp is. This worries the surgeon and surgery is scheduled for 4/8/09. Of course we have to watch her closely because often times this equipment can “go bad” and some of it can burst through the skin. If it happens, of course we will take her to the ER at Scottish Rite. Maggi’s appetite is decreasing and her whining is increasing. This morning (3/31/09) she woke up with a cold…and this the WORST thing that could happen right now. So far she is sneezing more than coughing and we are taking all preventative measures so that it doesn’t move into her chest…PRAY that she heals because she has to be in tip-top shape for surgery and this time the surgery is super crucial because it appears the equipment is failing. This will be her 7th surgery and only 18 days away from her 4th birthday, she has been through so much. Much Love to you All!

Well, again, Maggi came through another surgery with flying colors!! Dr. Novelly put in a new set of tubes that are a little more permanent. They should stay in for about 3 years or so. This will help her to not have so many ear infections.

They also did the ABR (Auditory Brainstem Response) test. If you would like to know more about how this test works, you can check it out by CLICKING HERE. The test showed that Maggi’s left ear is perfectly normal, however she showed moderate hearing loss in her right ear. They said it was like putting your finger in your ear… you can still hear, but it’s really muffled. The doctors also said that this could have been a little inaccurate due to the problems that Maggi has been having with ear infections. They say that it would be best to wait another 6 months to a year and retest her to see if the reading improves.

We will be going to see Dr. Devito tomorrow (3/20/09) for a check-up on Maggi’s back. He will most likely set a date for her next VEPTR lengthening. Keep this in your prayers, please.

Thanks to everyone for all of your support. Please pass Maggi’s information and website along to some of your family, friends and neighbors. Tell them to come to her website and read about this miracle child…. and ask them to pray for her. The more prayers, the better off we are!! =)

Love to you all!

Maggi did fantastic with surgery on 12/11/08! Her VEPTR2 Rod was lengthened by her surgeon at Scottish Rite Hospital. This procedure took Maggi back to a 55 degree thoracic curve in her scoliosis. This is an ideal degree for Maggi to be at so that she can maintain proper lung function. We are so proud of how well she did! Maggi went home only a few hours after the procedure was completed.

Thank you for all of your prayers and emails! We can’t tell you how much comfort it brought us during another terrifying event in Maggi’s health, we are thankful her quality of life has been improved, once again, through surgery.

A big HELLO to Christopher, who had surgery the same morning. His surgery was also successful and his parents were so sweet! We are still praying for you, Christopher!

Due to everyone in the house having a virus, Maggi’s surgery has been postponed until Monday, December 8. Please pray that we are all better by then… and we’ll pray that you guys don’t get this bug. It is HORRBILE!