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Maggi Diagnosed with Trisomy 9 Mosaic Syndrome

Published on May 18, 2006 By Patrick Blair

The first year of Maggi’s life, we almost lost her several times. Maggi had been in and out of Scottish Rite Hospital for various health issues, and we knew there had to be a greater problem causing her to be so sickly. The genetics department at Scottish Rite tested Maggi at 2 months old, but [...]

Skull Surgery set for August 18, 2005

Published on August 18, 2005 By Patrick Blair

Craniotomy Surgery performed to correct Maggi’s skull deformity (craniosynostosis). Procedure performed by Dr. Fernando Burstein, plastic surgeon, and Dr. Kevin Stevenson, neurosurgeon. Craniotomy Procedure – Surgical treatment of craniosysnostosis began in the 1890′s and multiple procedures have been developed and advocated for the treatment of this condition. In modern times, surgical correction of craniosynostosis is [...]


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