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Maggi’s Prognosis & Future Treatments

Published on August 25, 2010 By Patrick Blair

Maggi undergoes daily therapies for her restricted lung disease with an inhaler 2x/day, and breathing
treatments as needed.

Maggi’s Medical Team

Published on August 25, 2010 By Patrick Blair

Maggi has over 20 specialists and therapists that she sees on a regular basis. We average 70 appointments or more in a 6 month period. Donna has taken on the role of “Health Care Administrator,” and daddy – being the muscle of the family – is the “Orderly.” Maggi’s life of countless surgeries, appointments, hospitalizations, [...]

What is Trisomy 9 Mosaic Syndrome?

Published on August 25, 2010 By Patrick Blair

General information – The name “Trisomy” means three (“tri”) copies of a chromosome (“somy”). Unlike most individuals, people that have any form of Trisomy are born with a whole or partial third copy of a chromosome, instead of the expected two. For example, a child that has a third copy of the number 21th chromosome, [...]


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