It’s that time again. Time for Maggi’s rod lengthening. As usual, we’re excited that Maggi’s back will get a little straighter, but at the same time, we’re still worried. It never gets easier to watch your child roll away into an operating room. We KNOW that Dr. Devito and the rest of his team are [...]
Last night was horrible! Usually, right before a spine surgery, you can tell. Maggi doesn’t sleep very well. She’s up late with bad muscle spasms, jerking around in pain. Last night she was doing it again, but worse. It was like she was past due for surgery. Of course, that’s not the case since she [...]
Sometimes, people don’t take the time to think about what the parent of a special needs child goes through on a daily basis. They don’t think about the emotional pain and anguish, the physical pain and anguish, and the financial pain and anguish. They don’t think about why the family doesn’t go and do a [...]