It’s that time again. Time for Maggi’s rod lengthening. As usual, we’re excited that Maggi’s back will get a little straighter, but at the same time, we’re still worried. It never gets easier to watch your child roll away into an operating room. We KNOW that Dr. Devito and the rest of his team are [...]
Maggi undergoes daily therapies for her restricted lung disease with an inhaler 2x/day, and breathing
treatments as needed.
Maggi has over 20 specialists and therapists that she sees on a regular basis. We average 70 appointments or more in a 6 month period. Donna has taken on the role of “Health Care Administrator,” and daddy – being the muscle of the family – is the “Orderly.” Maggi’s life of countless surgeries, appointments, hospitalizations, [...]