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Another Surgery on the Horizon

Published on February 10, 2012 By Patrick Blair

It’s that time again.  Time for Maggi’s rod lengthening.  As usual, we’re excited that Maggi’s back will get a little straighter, but at the same time, we’re still worried. It never gets easier to watch your child roll away into an operating room.  We KNOW that Dr. Devito and the rest of his team are [...]

Maggi’s Prognosis & Future Treatments

Published on August 25, 2010 By Patrick Blair

Maggi undergoes daily therapies for her restricted lung disease with an inhaler 2x/day, and breathing
treatments as needed.

Maggi’s Medical Team

Published on August 25, 2010 By Patrick Blair

Maggi has over 20 specialists and therapists that she sees on a regular basis. We average 70 appointments or more in a 6 month period. Donna has taken on the role of “Health Care Administrator,” and daddy – being the muscle of the family – is the “Orderly.” Maggi’s life of countless surgeries, appointments, hospitalizations, [...]


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